Making Up Songs In My Head

Josiah saw an Otolaryngologist yesterday at Texas Children’s Hospital. Yes, we used a wheel chair to get the boy in the door.  No, it did not go well.

His amazing caregiver came along for the fun.  The visit would have been impossible without her.  Though no medical professional touched Josiah the entire 2.5 hours we were there, he made that face he always makes when he’s stressed and ready to flee.  It’s usually one of the first indications Josiah is anxious.  He tightens his mouth and sticks his tongue out ever so slightly with an anguished expression on his face.  It means let’s go NOW!

It used to be we’d just see ‘the face’ as I affectionately call it when Josiah felt uneasy. Lately though, he has been pairing ‘the face’ with a swift blow to the side of his head. Depending upon his level of frustration, we sometimes hear a moan or two. Yesterday though Josiah was scooting his feet across the floor to propel the wheel chair out the door.  He was wapping himself in the head repeatedly; communicating quite clearly he was done with that place.

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Our Own Camp Blessing

This summer many of Josiah’s friends are spending a week away at camp.  A week away from family and the comforts of home.  A week away at an incredibly amazing place called Camp Blessing.

Josiah isn’t signed up to go. I don’t think he is ready for Camp Blessing. Not just yet anyway. I don’t think Camp Blessing is ready for the likes of Josiah. They’d probably shut the place down if he signed up. A few days before we would get a notice camp has been canceled or suddenly closed due to unforeseen circumstances.

From what I hear, the staff and volunteers are amazing.  The kids have a blast. Everyone comes away with a positive experience. For the life of me, I can’t see how that would ring true for Josiah.  Maybe I’m underestimating my kid.  Maybe Josiah wouldn’t be the most challenged, overwhelmed, unwilling participant there, should we ever register him.  I don’t know.

But this year, we had our own Camp Blessing of sorts.

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Taking Back Control

I’m not naive enough to think a ‘timer’ is all it will take to turn our boy around. Many times it seems we are in way over our heads. Sometimes it feels like it’s time to wave the white flag.

Our current plan isn’t working.

So, I came up a new plan.  It has 4 main goals: Independence, Compliance, Structure/Routine and Focused Attention.  Within each of these goals, are specific objectives. Under compliance it states: Be prepared. Show visual card  while giving verbal command.  EXPECT compliance. Count to 5 using your fingers so Josiah can see them.  At 5, use a full physical prompt (which basically means, make him comply).

That piece right there has started to change things quite a bit. No more letting this boy call the shots.

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Who’s Training Who?

It could just be my imagination, but when I first started teaching Kindergarten, it seemed like the ‘challenging’ students were always placed in my classroom.

This was back in the day (am I really old enough to say that) when most of the children were super sweet, excited to be there and for the most part, rather well behaved. There were just 1-2 per year that would test you at every turn.  I seemed to draw them like a magnet.

I remember a mom and her son standing before me 30 minutes early the first day of school. Nervously racing around to make sure everything was ready, I was startled by their early arrival.

“This is Sam (not his real name). You’re going to have your hands full with this one!” was his mother’s greeting to me.  Astounded that anyone would speak that way about their child and most especially IN FRONT OF their child, I smiled reassuringly, then reached down to put my arm on Sam’s shoulder. “It’s going to be a great year!” I said.

“Ha! young thing, you’ll see”, came mom’s response. With that she turned and walked out of the room, leaving her son alone with me.

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