The Caregiver Song

By Sandy on June 7, 2023

WANTED: A CAREGIVER FOR ONE ADORABLE GUY!

Listen To the Tune of ‘The Nanny Song’ from Mary Poppins. THEN apply that tune to the lyrics below!

If you want this here assignment, we’ve a boy a bit defiant

Doesn’t talk, or sleep, eats well, can leap

You must be firm, must be consistent, help him out, be his assistant

Help him in the bathroom, cut his hair, take him out, everywhere.

Never be bossy or rude, Feed him lots and lots of food

Love him like he’s your own child, even if he gets real wild

If you will never scold or leave him, he will never give you cause to feel grim

He won’t pull your hair out to make you scream, he may even share his chocolate ice cream

Hurry Caregiver, let us know. Sincerely, from Jo’s mom and Jo.

Wings for All at George Bush Intercontinental Airport

By Sandy on April 24, 2018

What an AMAZING day!

Two months ago Josiah was extremely self injurious, aggressive and destructive. His quality of life was deplorable. His future at best, looked bleak.

This morning, he boarded a plane.

Josiah checked his baggage, secured a boarding pass, breezed through security, walked a very long way towards the gate, rode an electric cart, waited in the boarding area, walked through the plane, buckled his seat belt, enjoyed a snack on board and even visited briefly with the pilot in the cockpit before deplaning.

Better When I’m (car) Dancing

By Sandy on January 17, 2018

Today has been a bit rough. It typically goes this way. We have a week or a few days of calm and then like the flip of a switch, chaos reigns.

Josiah screamed off and on several times. Once again, not sure why.

When it thawed enough to venture out, we went for a ride. One thing Josiah has always enjoyed is going for a drive. He doesn’t always like to get out of the car when we arrive at our destination and sometimes it’s a struggle to get him in the house once we get home, but Josiah loves rides so much we take them frequently.

Our ‘beloved’ (I use that term loosely) van was in an accident and totaled 2 days after Christmas. Everyone involved was fine thankfully and we were blessed to be able to get another car just a few days ago.

Daily Data

By Sandy on November 14, 2017

We keep a Daily Data sheet for Josiah to give us detailed information about his day. It requires just a check mark or brief comment every so often. It used to be much more complicated, calling for more time and effort.

When Josiah was much younger, we sent a notebook back and forth each day to jot down messages between school and home. His teachers would highlight anything of great importance. I would add comments about him from home. It was helpful since Josiah is non verbal, however it gave a very limited view of his day. To be honest, who has time to write a paragraph or two everyday when you are responsible for a classroom full of children anyway?

Top 5 Reasons to Visit Panama City Beach Florida

By Sandy on August 31, 2016

If you are the parent of a child with special needs, desperate for some respite, I have JUST the place for you.

If you are not the parent of a child with special needs, desperate for some respite, this place is perfect for you too. Can’t you just picture yourself sitting there, sea breeze gently rustling your hair, toes gradually embedding ever so slowly in the sand with the peace and tranquility of the waves washing all your cares away?