Waiting for that Big Day

Recently we took Josiah to an Astro’s baseball game.  Knowing he may last only an inning or two, we ventured out, wheel chair in tow and caregiver along for the fun.

Josiah did unbelievably great at the game. We set him up in a large open space above the general seating area where wheel chairs park.  We didn’t have wheel chair tickets. Some friends were there with their kids and generously made room for us.  What a brilliant plan to sit there.

Josiah was able to take in all of the action while not feeling confined by too many people sitting too close to him.  There was no shoe throwing, no shirt throwing and definitely no chewed up, spit out hot dog throwing (which we have experienced with him at other professional sporting events) He simply sat and stared at the bright stadium lights, seemingly content with it all.

Read more

Our Own Camp Blessing

This summer many of Josiah’s friends are spending a week away at camp.  A week away from family and the comforts of home.  A week away at an incredibly amazing place called Camp Blessing.

Josiah isn’t signed up to go. I don’t think he is ready for Camp Blessing. Not just yet anyway. I don’t think Camp Blessing is ready for the likes of Josiah. They’d probably shut the place down if he signed up. A few days before we would get a notice camp has been canceled or suddenly closed due to unforeseen circumstances.

From what I hear, the staff and volunteers are amazing.  The kids have a blast. Everyone comes away with a positive experience. For the life of me, I can’t see how that would ring true for Josiah.  Maybe I’m underestimating my kid.  Maybe Josiah wouldn’t be the most challenged, overwhelmed, unwilling participant there, should we ever register him.  I don’t know.

But this year, we had our own Camp Blessing of sorts.

Read more

Movies and More, the Sequel

Josiah at ZootopiaIf at first you don’t succeed, try, try again.

Two days after our initial screening of Zootopia, Josiah and I tried it again. This time we went on a Sensory Friendly Day, with the lights turned up (at least they were for part of the film, not sure whey they suddenly went out) and the sound turned down, so everyone can get up, dance, walk, shout or even sing if they want. One of the local theaters offers this option four times a month.

Josiah made it through the entire film this time.  Read more

Movies and More

Josiah at the movies Today Josiah and I went to the movies.  We spent more time preparing for the movie than actually enjoying it.

We were the first to arrive.  The doors were locked when we got there. We sat in the parking lot for 10 minutes while I downloaded an app, entered a gift card number and opened up my email to get electronic tickets.

We watched as the ticket taker attempted to copy the authorization number from my phone in order to print out paper tickets.  It wasn’t going well for some reason.  He walked away to get help, leaving Josiah and me to wait.  Josiah walked away too, many times actually.

Read more

Big Tandem Bike

tandem bikeOh the places you’ll go

Oh the things you will see

When you ride on a big tandem bike with me

 

You’ll pedal fast and I’ll pedal slow

It won’t really matter as long as we go

As long we’re out in the warm Texas sun

You working hard, and me having fun

Read more