What 24 Years of Being Josiah’s Mom Has Taught Me

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We’ve walked a long, windy, bumpy road with Josiah since 2002.  I vividly remember not being alarmed when we learned he would have Down syndrome.  I truly felt Josiah would just have a few extra hurdles to jump over.  With four typically developing siblings as built-in role models how hard could it be?

I love a challenge.

But, had I known how overwhelming, turbulent and exhausting life would become I don’t think I would have been so optimistic.

Here are some key takeaways that may help others just beginning this journey:

Read more…

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ETB 41- In this episode I talk with Beverly Parrish about her daughter Hannah, age 28, who has Down syndrome.   Beverly and her husband Chris learned that Hannah had Down syndrome in utero.   Feeling a bit overwhelmed at their lack of knowledge about Trisomy 21 they began to research, trusting that God had his perfect plan in place.

Beverly is a mother of 7 with 9 grandchildren and has been married for 40 years.  She homeschooled the kids for 30 years and currently works with dyslexic children and adults as a facilitator in the Davis Dyslexia program.  Beverly also tutors struggling readers.  In her free time, she published a book, Beyond the Diploma – Homeschooling with the End in Mind.  See link below.

As the only girl, sandwiched between 6 brothers, Hannah is a cheerful, engaging young lady who brings joy and seems unaffected by circumstances that impact many of us.

Beverly believes in embracing the uncertainty.  Instead of having your expectations dashed or unmet all the time,  she recommends just embracing the idea that you don’t know.  It’s not a race and it’s not a competition.  Embrace the uncertainty and don’t compare your situation.

Davis Dyslexia Program
https://https://learnyourway.biz/

Beyond the Diploma – Homeschooling with the End in Mind by Beverly Parrish
https://www.amazon.com/Beyond-Diploma-Homeschooling-End-Mind/dp/1946629456

The Gift of Dyslexia
https://www.amazon.com/Gift-Dyslexia-Smartest-Revised-Expanded/dp/0399535667

Welcome to Holland
https://www.dsasc.ca/uploads/8/5/3/9/8539131/welcome_to_holland.pdf

Connect with Beverly
beverlyparrish.com
www.beverlyparrish.com
www.learnyourway.biz
281-638-0297

Connect with Sandy
IG: https://www.instagram.com/sandydeppisch
Embrace the Blessing Facebook Group: http://bit.ly/ETB4ME
Website: http://www.embracetheblessing.com/

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ETB 25:  In this episode I talk with Teresa Trent,  author of  3 different mystery series, whose 29 year old son Andrew has a dual diagnosis of Down syndrome and Autism.   He’s  also non verbal, has a seizure disorder and from that he’s developed a need for a  Peg tube.   Andrew is a sweetheart, greatly loved and never in a bad mood.

It’s no mystery that accepting your child’s diagnosis can be challenging.  When Andrew was born, it was very difficult for Teresa.  She had a hard time accepting it and did not have the best reaction.  It took her about 2 years to just truly accept it and be at peace with it. Though she loved her precious baby all the way through, something  just didn’t click for her initially.

If that rings true in your case, Teresa encourages you to reset your mind and focus on going day to day, milestone to milestone, living in the present and just enjoying your child.

Teresa started writing at age 49.  She believes you are never too old or too young to begin writing.  Her Pecan Bayou series includes a character with Down syndrome named Danny.

You can find Teresa’s website and all her books at the links below.

Connect with Teresa Trent
Facebook:   https://www.facebook.com/teresatrentmysterywriter
Twitter:   https://twitter.com/ttrent_cozymys
Blog:   https://teresatrent.blog/     (Books to the Ceiling)
Website:   http://teresatrent.com
Goodreads:  https://www.goodreads.com/author/show/5219581.Teresa_Trent
Instagram:   https://www.instagram.com/teresatrent_cozymys/
Bookbub:      https://www.bookbub.com/profile/teresa-trent
Teresa’s Amazon Author Page – https://www.amazon.com/Teresa-Trent/e/B005O7FIE2/

Connect with Sandy
IG: https://www.instagram.com/sandydeppisch
Embrace the Blessing Facebook Group: http://bit.ly/ETB4ME
Website: http://www.embracetheblessing.com/

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EBT 23:  In this 2nd half of a 2 part episode I continue to talk with Cynthia Rodriguez, amazing mom, grandma, and special needs advocate who loves to reach out and help others.  If you have a child with a disability and happen to  cross Cynthia’s path somewhere out in the world,  more than likely she will strike up a conversation to check in with you to see how things are going.  She’ll offer suggestions and resources and may even accompany you to the right agency to get you the help you may need.   That’s just who she is.

Yet, 24 years ago when her son Victor was born with Down syndrome, Cynthia didn’t even want to hold him for the first few days.   Life took an abrupt turn at that point and it took Cynthia a little while to accept all the changes.  From initial reluctancy to totally embracing her new journey, Cynthia is a source of love and laughter, drawing others in with her joy and making a positive difference for so many.

In addition, Cynthia does Court monitoring visits for people who have guardianships to make sure they are being treated properly and have everything they need.

If you haven’t heard the first half of Cynthia’s interview,  be sure to listen to it in its entirety.  You won’t want to miss any of her inspiring perspective.

GHFEDS
http://ghfeds.org/

HCS – Home and Community Based Services
https://www.hhs.texas.gov/providers/long-term-care-providers/home-community-based-services-hcs

Health Insurance Premium Payment (HIPP) Program
https://www.hhs.texas.gov/services/financial/health-insurance-premium-payment-hipp-program

Side by Side Parent Support Team: League City
https://www.facebook.com/groups/155613631266509

STAP – Specialized Telecommunications Assistance Program (STAP)
https://www.hhs.texas.gov/services/disability/deaf-hard-hearing/stap-services

Swallowing and Speech Services
https://www.swallowingandspeechservices.com/

Texas Medicaid Waivers
https://texasmedicaidwaivers.com/

Connect with Sandy
IG: https://www.instagram.com/sandydeppisch
Embrace the Blessing Facebook Group: http://bit.ly/ETB4ME
Website: http://www.embracetheblessing.com/

By on

EBT 22:  In this episode I talk with Cynthia Rodriguez, amazing mom, grandma, and special needs advocate who loves to reach out and help others.  If you have a child with a disability and happen to  cross Cynthia’s path somewhere out in the world,  more than likely she will strike up a conversation to check in with you to see how things are going.  She’ll offer suggestions and resources and may even accompany you to the right agency to get you the help you may need.   That’s just who she is.

Yet, 24 years ago when her son Victor was born with Down syndrome, Cynthia didn’t even want to hold him for the first few days.   Life took an abrupt turn at that point and it took Cynthia a little while to accept all the changes.  From initial reluctancy to totally embracing her new journey, Cynthia is a source of love and laughter, drawing others in with her joy and making a positive difference for so many.

In addition, Cynthia does Court monitoring visits for people who have guardianships to make sure they are being treated properly and have everything they need.

GHFEDS
http://ghfeds.org/

HCS – Home and Community Based Services
https://www.hhs.texas.gov/providers/long-term-care-providers/home-community-based-services-hcs

Health Insurance Premium Payment (HIPP) Program
https://www.hhs.texas.gov/services/financial/health-insurance-premium-payment-hipp-program

Side by Side Parent Support Team: League City
https://www.facebook.com/groups/155613631266509

STAP – Specialized Telecommunications Assistance Program (STAP)
https://www.hhs.texas.gov/services/disability/deaf-hard-hearing/stap-services

Swallowing and Speech Services
https://www.swallowingandspeechservices.com/

Texas Medicaid Waivers
https://texasmedicaidwaivers.com/

Connect with Sandy
IG: https://www.instagram.com/sandydeppisch
Embrace the Blessing Facebook Group: http://bit.ly/ETB4ME
Website: http://www.embracetheblessing.com/